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EMBARC

The European Bronchiectasis Registry

  • Developing the next generation of treatments requires multinational co-operation and co-ordination. Bronchiectasis has historically been a neglected "Orphan" disease. An international network will build capacity to perform high impact clinical trials and observational studies in bronchiectasis

  • The European Bronchiectasis Registry is supported by the European Union Innovative Medicines Initiative under the "New Drugs for Bad Bugs" programme, to help facilitate the development of new antibiotics against Gram-negative infections

  • A sub-study gathering data on patients with pulmonary NTM disease has been created and linked to the European bronchiectasis registry. Help us reach the target of 1000 patients!

  • EMBARC work closely with the European Lung Foundation to promote patient priorities and improve patient education and resources.

  • The largest bronchiectasis biobanking study is underway and will gather in depth data on cilia, inflammatory markers and many more clinical measures linked to the registry.

  • Advancing research and improving clinical care for patients with non-cystic fibrosis bronchiectasis

  • EMBARC promotes awareness and clinical excellence in bronchiectasis care through educational events, courses and online resources.

  • EMBARC works with the European Respiratory Society and the national societies and networks around the world to promote co-operation, data sharing and clinical research in bronchiectasis

  • EMBARC is a European Respiratory Society clinical research collaboration, dedicated to encouraging participation from young and experienced researchers around Europe in the field of bronchiectasis

EMBARC is a pan-European network committed to promoting clinical research and education in bronchiectasis, through sharing of protocols, research idea and expertise. Central to this project is the creation of the European Bronchiectasis Registry, a collaboration open to all investigators around Europe caring for patients with bronchiectasis.

Latest Research

Recruitment

Join EMBARC

EMBARC is an open group and free to join.

For more information contact info@bronchiectasis.eu

Sign up at the registration page

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Click above for video highlights and session recordings from the first NTM and Bronchiectasis Workshop

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Third World Bronchiectasis Conference in Washington, D.C

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Click above for highlights of the 2nd World Bronchiectasis Conference, Milan 2017

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View video highlights here from the 1st World Bronchiectasis Conference, Hannover 2016

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EMBARC AT ERS 2015